Self-Diagnosis and the Value of Official Diagnoses: My Perspective as an Autistic Advocate

Self-diagnosis is a start, not a substitute for official diagnosis. Neurodivergence needs empathy, respect, and nuanced understanding.

A diagnosis is something I have, not who I am. Yet, in today’s world, this distinction often feels blurred. As someone who is autistic and has both personal and professional experience with neurodiversity, I’ve thought deeply about the rise of self-diagnosis and what it means for how we view neurodivergence.

Self-diagnosis is often dismissed as superficial or lazy, but in my experience, it’s far more complex than that. While it can be a vital step toward self-understanding, I also see the risks, like underestimating the real challenges of neurodivergence or misusing diagnoses for personal advantage.

My Journey Toward Understanding

For many years, I felt “different” without knowing why. Like so many others, I struggled with a sense of misunderstanding and isolation. Long waiting lists, stigma, and complicated diagnostic processes made seeking an official diagnosis feel daunting. I understand why some people turn to self-diagnosis as a way to make sense of their experiences.